Valerie's Name & a Dream

Things are still pretty much the same.  A genetic counselor called us last Friday and confirmed the Trisomy 13 results.  She also said it probably wasn't necessary to come back to St. Vincents to meet with the Pediatric Heart Specialist anymore for Valerie's heart.  This made me SO mad!  I basically said why in the world would we STOP coming to keep up with her heart??  She said because Trisomy 13 babies are usually so weak, they don't like to perform surgeries on them.  Still....it was like they are giving up all hope on our baby.  We are not giving up hope, and will continue to meet with the heart doctor as often as we can.  Never know when we might see a miracle :)

Valerie's daddy thought of her name.  There is a speech that Kyle loves given by Jimmy Valvano at the ESPY awards in 1993.  Valvano had cancer, and passed away a couple months after he gave the speech.  In the speech he says, "Don't give up, don't ever give up."  He also says to love, smile, and laugh every day.  This is the attitude we are taking with Valerie.  We will never, ever give up on her.  We will love Valerie and Lilly with everything we have.  Besides loving the name Valerie, we named her bacause of this speech that Jimmy Valvano gave.  Ann comes from my mother's middle name.  My mom has been so loving and supportive from the beginning, and it is only fitting that she should be named after her grandma.  

I had a dream the other night about Valerie, and I can't stop thinking about it.  In my dream, I carried her full term and then had her.  She was so beautiful and perfect when she was born.  I held her for a long time, and a nurse came in to take her from me.  I kept saying, 'I don't want to let her go' and 'I can't let her go' over and over again.  Makes me so sad every time I think about it.

Please keep praying for Valerie.  It means so much to us that everyone is so supportive and loving.  Thank you all so much!